How to maximize your LinkedIn presence has been a hot topic these last few years. LinkedIn has grown to be a viable business and prospecting tool from many people. LinkedIn's presence has been best described as a business related social networking site serving more than a 120 million registered users. On a monthly basis Linkedin's presence has been upwards of 50 million visitors a month. Can you just say wow?
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Results From Man Of The Year Award
The day had finally arrived and although I was excited I was some what nervous. All it took was someone willing to drop their check book off at the voting table to “pull the votes” during the event. Either way I was runner up for Man of the Year Award here in Kansas City. I won't tell you different…I was extremely disappointed and that says it LIGHTLY!
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Man Of The Year Contest | Please Vote For Me
When you think of “Man of the Year” you tend to think of someone great and very popular amongst society. What if that “Man of the Year” was someone that wasn’t particularly popular in the sense of a national celebrity? I was nominated as “Man of the Year’ recently and I was very humbled yet I saw it as an opportunity to spread awareness about Niemann-Pick Type C.
Twitter Is A Funny Creature. 3 Things To Get Started
Twitter twitter twitter… what in the world is this thing? It's funny sounding and for the more detailed people out there it has been challenging their written communication skills by only allowing 140 characters per post. Geez. Well I'm here to share some of my experience of using Twitter with you and also to give 3 out of a million things that you could do to get started.
Less than 2 years ago I started my Twitter account @MGStults and my thought with my Twitter handle was ” I didn't want anyone to know my name”. Yes your laughter is so loud I can hear it all the way through the internet connection. Very silly wouldn't you agree? If your online you are absolutely giving up some of your privacy. You probably have Facebook don't you? [Read more…]
Your Vote Counts…30 Under 30 Event
I'm very honored that me and my wife have been selected as one of the 30 people under the age of 30 who have contributed to our community in some manor. Although we feel we have a ton of work to accomplish, the Niemann-Pick Children's Fund, Inc is dear to our heart. Our two oldest son's Brisan and Parker Stults were diagnosed with a rare FATAL neurological disease called Niemann-Pick Type C Disease. Sometimes referred to as the “Childhood Alzheimer's” because of the similar pathological features they share. They only have a childhood to live a lifetime.
Brisan and Parker heading to Disney World June 2009
Roughly 75 patients in the US currently and only 500 cases diagnosed worldwide EVER. This is a genetic disease on Chromosome 18. You get a Gene from your mommy and daddy. We each passed a bad copy of our Gene which activates this horrible disease. The statistical odds of this situation coming to fruition is beyond comprehension. In NPC it is the cells inability to metabolize cholesterol. Essentially the recycling factor breaks down and this good cholesterol your body needs to form cells ends up becoming the culprit. It stores all these fatty lipids in the Brian, Liver, Spleen, and Bone Marrow causing a domino affect of neurological problems that eventually leads to their premature death. [Read more…]
Awareness of Niemann-Pick Type C
As a society we are familiar with some of the other common diseases but sometimes a name says it all, “Niemann-Pick Disease Type C” and just leaves you wondering.
Brisan and Parker Stults our my two eldest son's who's prognosis captures the meaning of Niemann-Pick Type C Disease (NPC). It's a genetic neurological disease that strikes children through accumulation of cholesterol and other excess fats in the cells of the liver, spleen, and brain. When brain cell function is blocked, the child loses coordination, stumbles, falls, and eventually will need a wheelchair, hospital bed, and other adaptive equipment. As the disease worsens, other devastating symptoms develop, including loss of the ability to speak and swallow, and seizures may occur. The health of children with NPC declines until ultimately, the disease claims his or her life. This disease affects roughly 75 people in the US and around 500 worldwide (ever).
Today, there is no cure or effective treatment for Niemann-Pick, but research is making progress. Tomorrow through research made possible by the financial support of generous contributors, these precious children can be saved! But they need your help now. This disease once solved or partially will provide a gateway into other storage disorders and it's relation to Alzheimer's, atherosclerosis, HIV/Aids, and stroke.
Our goal is to do our part to help support research through fundraising, promote awareness, support other NPC families through existing channels, and expose how one disease can help solve many other diseases.
The Niemann-Pick Children's Fund, Inc is a 501(c)3 tax exempt, non profit – 80-0317862. NPCF website is www.NPCFund.org and is based in a suburb of Kansas City, MO. You can also visit Brisan & Parker's website at www.BriParDun.com.
We ask for your support and prayers. Together we can make it happen!