As a society we are familiar with some of the other common diseases but sometimes a name says it all, “Niemann-Pick Disease Type C” and just leaves you wondering.
Brisan and Parker Stults our my two eldest son's who's prognosis captures the meaning of Niemann-Pick Type C Disease (NPC). It's a genetic neurological disease that strikes children through accumulation of cholesterol and other excess fats in the cells of the liver, spleen, and brain. When brain cell function is blocked, the child loses coordination, stumbles, falls, and eventually will need a wheelchair, hospital bed, and other adaptive equipment. As the disease worsens, other devastating symptoms develop, including loss of the ability to speak and swallow, and seizures may occur. The health of children with NPC declines until ultimately, the disease claims his or her life. This disease affects roughly 75 people in the US and around 500 worldwide (ever).
Today, there is no cure or effective treatment for Niemann-Pick, but research is making progress. Tomorrow through research made possible by the financial support of generous contributors, these precious children can be saved! But they need your help now. This disease once solved or partially will provide a gateway into other storage disorders and it's relation to Alzheimer's, atherosclerosis, HIV/Aids, and stroke.
Our goal is to do our part to help support research through fundraising, promote awareness, support other NPC families through existing channels, and expose how one disease can help solve many other diseases.
The Niemann-Pick Children's Fund, Inc is a 501(c)3 tax exempt, non profit – 80-0317862. NPCF website is www.NPCFund.org and is based in a suburb of Kansas City, MO. You can also visit Brisan & Parker's website at www.BriParDun.com.
We ask for your support and prayers. Together we can make it happen!